Sunday, November 16, 2008

PINK is everywhere!

Where do I begin? We woke up this morning to absolutely beautiful weather. Jeremy took off for a quick mountain bike ride, while Isabella and I loaded up the chariot and headed out on my bike. We rode up to the coffee shop, had some breakfast and coffee (of course) then stopped at the park on the way home. It was so beautiful and the wind had not kicked up yet.

The rest of the day we spent doing chores. Jeremy finished some shelves for Isabella's room which just had to be pink! They turned out beautiful and we loaded them up with her books. We cleaned and organized her toys, now her room looks comfy! Originally we decorated with frogs, fish and flowers, but slowly it is turning into a 'princess' room. First Isabella found a princess light switch plate, then the pink shelves and now she is going to ask Santa for a Princess light.


Last Saturday we went out to celebrate Samantha's birthday with the uncles and Donna - Sam's friend. It was a wonderful dinner - but we probably won't be going back soon - it was gourmet so that meant really good food but really tiny portions and big prices. :)




Then on Sunday (Sam's actual birthday - Sam had a couple of friends over and we had dinner and birthday cake.


This past week the big kids were with their dad. Normally it would be a bit quiet but Samantha was not feeling well so she stayed with us until Thursday night. I took her see Dr. Miller and it looks like she just had the normal crud that is going around. Nothing special ... We laughed about it. When Samantha found out that she didn't even have strep - she said, "nothing special or amazing? I don't know if I know how to handle that."
The infection in her ankle is looking a bit worse so we decided to see if Sam could have the surgery sooner than later. As of now it will be the week of December 15th. I don't know the exact day or time yet. She is happy and sad - she knows that she will feel better but she is still a bit angry that she has to do anything. She felt a bit overwhelmed last week and had a little breakdown. After things settled down, she said how she hates having the emotional outbursts. I just laughed and said - get used to it - with or without cancer/amputation, you are still a girl and that just is part of the package.
We finished up painting her room on Tuesday. Jeremy put her TV back up and moved some shelves. Once Samantha has it all put back together I will take a picture and show everyone - needless to say it is pink as well.
In between painting Sam's room and getting the shelves up in Isabella's room - we managed to get Isabella a haircut (short like Snow Whites was her request) and I had my eyes checked (I am getting old) and I also got a haircut. I did what Samantha recommended - she likes it but Daniel does not. I am still making up my mind. The haircut would make me look a bit younger if my eyes didn't have the dark circles and eczema around them. It actually made me decide that I need to start focusing on myself a bit more. I now have to fix my hair, I can't just put it in a pony and head out. I also need to drink a lot more water. My eye doctor commented on that as well as the lady who took my blood the other day. So I am trying to drink more water and less coffee.
The reason I had my blood taken was to check my thyroid levels again. It turns out that I am way out of whack again. The doctor was surprised that I felt as good as I did. She increased the amount of medicine I take and after a week - when most people start feeling good and loosing weight - I gained 5 pounds - figures! That combined with my haircut has motivated me to start focusing on eating better and exercising more. I found a website - livestrong.com - that is a lot like weight watchers just free! You can keep track of what you eat and how many calories as well as how much you exercise. I think I will try that for a while - we will see how long I can go...
The wonderful weather helps - I can get out and ride my bike. It is a 2 for 1 - I get some exercise and stress relief. :)
Until nextime -
Night and Love to everyone!











Friday, November 7, 2008

So I woke up yesterday - looked at myself in the mirror and just shook my head. My eczema had flared over the evening. This didn't surprise me. I just pulled out the cover up and moved on. Samantha tried her best to sleep in but ended up getting up around 7:30 am (still better than 5:30 am) .

We left the house and arrived around 11 am. She had her left leg and pelvis basic x-rays. The old bone scans that she usually gets consisted of in injection of some kind of radio-active fluid, then a 2 hour wait and the 1 hour bone scan. This time she got a PET scan, it is more detailed and she only has a 30 minute wait until the actual scan.

The result comes out in a 3 dimensional image of her body - we looked at it beginning at the top of her head all the way down to her toes - kind of like her body as a tube that we look into. All areas of high metabolic activity show up colors from blue (cool) to red (hot). Of course her brain is mostly red - lots going on there as it should be - then down to her lungs which were nice and blue with no hot spots. Further down there were a couple of expected hot spots in her left leg where she is healing and then a bit lower where she has her infection.

The good news is that she is still cancer free - took me long enough long enough - huh? :)

After hearing that great news from the docs we then turned to the talk of her ankle and the options. Not much has changed, however, Samantha had an opportunity to actually look at a prosthetic and she again asked extremely insightful questions. Dr. Heare was proud of her.

I believe after all is said and done - she is leaning back toward the amputation. The infection in her ankle has gotten a bit worse so we will definitely be taking care of things in December. Samantha wants to be able to enjoy Christmas so I am thinking it will happen on the 31st... of course this all depends on Dr. Heare.

Samantha wants some time to talk with her friends about it and then she will give me the final ok to let Dr. Heare know.

I know the next few months will be hard but we will just do it.

In the meantime - I am going to try to start sleeping again hopefully without dreaming. I have had a couple funky ones this week - from flying in an airplane when the door is opened mid flight to getting lost in an extra large parking lot where I wander around looking for my car. You don't really have to be Freud to figure those out, huh?

Isabella is finally back to normal, Daniel is trying to figure out Calculus and Jeremy is trying to find a way to deal with the stress of his job on top of all the family stress.

I think we have good game plans in place and we are looking forward to the holiday season.

Samantha has detailed the plan of her room to me and we will be working on that tomorrow. Hoping to have dinner with the uncles on Sunday to celebrate her birthday and then she is planning a party next weekend at her dad's house with her friends from school.

Back to normal! :)

Love to everyone!

Tuesday, November 4, 2008

Ups and downs

I am very proud to be an American today. I voted after researching all the issues and I feel hopeful - the first time in a long time. Voting is such a rush - no matter which party you align with - participating is power and a privilege. Ok - enough on that.

The big kids were with their dad over the weekend, but Samantha stopped by to trick or treat at the house and said hi. Isabella was excited to go out - but even more excited to stay in and hand out candy. She sat on the mat in front of the door and every time someone came toward the house she would call out 'MOM'... totally cute.

The weather here in Denver has been fantastic - just about perfect, so we decided to head to the zoo on Saturday.
Here is Isabella and Jeremy posing on the Hippo sculpture.








We hung out at the zoo for a few hours.
The carousel is an Isabella favorite. She also enjoyed seeing the giraffes - they had 2 babies (who are much taller that Jeremy and I).
Other than that we had a pretty quiet weekend. Jeremy got to go for a mountain bike ride on Sunday - I got to clean the house - yahoo!

Isabella took some time riding her scooter and her bike. I didn't get a picture of her on her bike but maybe next time.
I loved the dress and snow boot combo - of course everything is pink - ug - just kidding! :)
Monday both kids came home and it was crazy like normal.
However, when Isabella woke up this morning - she was hot. She stayed home from school today and we have been battling a fever. Isabella doesn't get sick so it is hard to see her white and lethargic. I am hoping that the fever will break soon - but I have a feeling I won't be sleeping a bunch tonight.
Samantha is feeling good for the most part. She admitted that she is back to feeling torn about what to do with her leg. She has more questions to ask Dr. Heare on Thursday. The ankle infection did break thru the skin this past weekend so it is good that we are meeting with the doctor soon. At this point I am flying by the seat of my pants. As I have said before - I will support either decision Samantha makes, however, I have to admit I don't know how I will do it - I only know I will.
Samantha's scans are on Thursday as well. I am recognizing a sort of pattern developing. This will be 8 months cancer free but the knot in my stomach has not gotten any smaller. I recognize that I am a bit more teary, less focused and that I won't sleep well until after we get good news. Friday will be an easier day.
Samantha turns 15 on Sunday. I usually take her out to lunch and we do some shopping. This year we may be decorating her room instead of her body. We will see... I know she has plans - again I am just along for the ride (wink wink!).
Well I am going to try and stay up to find out who our new president will be - we will see if I can make it. Whether your candidate wins or loses, I hope you are proud that we live in such a great country that gives us the privilege to participate.
Love to everyone!!

Thursday, October 30, 2008

Life is Good

I don't know if I have used that title before - but I know I feel it often. I was certainly feeling it tonight as we drove home from a fantastic dinner. Good food at a downtown oyster bar, good company with friends and a happy Isabella and of course good wine - even better because it was happy hour. As we drove home looking at the city lights with echos of Isabella's laughter ringing in my ears - Life is good popped into my mind.
I think I am going to recount event backward tonight - I know it has been a while since I posted last. We had some running around to do downtown tonight so we decided to eat out. We had a gift certificate to a great oyster bar and decided to use it. Noah met us there and we had a really nice time. The past week has been productive for me at least. The big kids are with their dad this week so I decided to try and work from the office instead of from home. It was a bit hard since I am so used to noise and the office is quiet - but I put on my headphones and listened to some music. I recently bought some new music - Bittersweet... It has a retro easy listening sound and it really makes me feel good (always a plus!). I actually worked out 2 times this week - wow!

Yesterday we met with the prosthetic (I want to say doctor - but he really isn't a doctor) dude for lack of a better word. The whole family showed up to learn all about a below knew prosthetic. It is really amazing what is available. Samantha was a bit uncomfortable but I believe Chris and I asked all the questions she wanted us to ask. She has more questions for Dr. Heare when we meet with him Thursday, but overall she has been feeling good and doing well in school.



Last weekend the kids and I hit the pumpkin patch. Isabella was able to enjoy the jumpy slides and obstacle course, some rides with Daniel and the maze.

Both the big kids were fantastic as usual - really good sports hanging out with Isabella.





Here Samantha is following Isabella as she exhausts every possible path in the maze. Samantha so cool in her sunglasses and Isabella barely peaking up over the straw bales.













Daniel went on the mini roller coaster with Isabella - she screamed the whole time. Daniel caught some video on his phone. Once I figure out how to get it off his phone - I will post - it is pretty funny.

He barely fit into the seat - I think it is funny that he is as big as the dragon.



Samantha is part of the freshman class government. They had a booth at a trick or treat event hosted at the high school for the younger kids later Saturday night. She went as a 'Fallen Angel' - is that great or what!






She looked beautiful as usual - she and Isabella had a great time.
Sunday last, I made a spaghetti and meatball dinner from the last of the garden tomatoes. I also made a couple pumpkin pies from fresh pumpkin - it was my first time and they turned out great. Much better than pumpkin from the can.
After dinner the kids carved their pumpkins. Uncle Ike tried to be a spectator but Isabella needed some help so he jumped right in. I will take a picture Halloween night when they are all lit up with candles. We had bunches of fun gathering the seeds and designing the pumpkins.
I decided to add this picture as a bonus. Isabella played dress up this morning while I was getting ready for work. She looked so adorable I grabbed a quick picture just before she brushed her teeth.
Tomorrow, Isabella's school is hosting a Fall Open house. She is super excited for Jeremy and I to visit her school - no matter how often we do it - she never gets tired of having us visit.
It has been such a wonderful week weather wise as well. The temp has been in the mid 70s - so we are thinking a visit to the zoo this weekend will be the best thing to do before the weather turns cold.
Last weekend Jeremy and I cleaned up the garden and tilled the soil - cleaned out the composter and mowed up the leaves. The yard is sort of ready for winter. This Sunday I will probably take advantage of not having the big kids around and try to get the whole house cleaned up instead of just a few rooms here and there.
After reading about our life this past week, you can understand why I think 'life is good!'
I hope everyone else's is the same - Love to everyone!

Monday, October 20, 2008

Glad to be Home


Well we left Denver on the 8 am flight on Wednesday. Isabella was full of energy but well behaved on the airplane. When we left it was 28 degrees and we arrived to a sunny warm day in San Fran.

We took the train downtown and hung out around the Embarcadaro and Pier 39. We tried to find a spot to store the luggage while we did some sight seeing - but there was nothing available. Unfortunately we had to haul the luggage around with us. As you can see from the picture - Isabella hitched a ride.


We had an oyster lunch and checked out the sea lions then hung out at a park to rest a bit. One thing I love about San Fran are the colors - there are so many beautiful plants and buildings - everywhere you look is life exploding. Even the people are colorful. I love the diversity.

I may steal the idea of the little vine cottage and create one for Isabella at our home. She loved hanging out in it!

We hopped back on the train and headed for the Oakland/Alameda area. We stayed with Ashish (Jeremy's boss) and his family. It was really nice - Jill - his wife - took such great care of us. We were totally spoiled.


On Thursday, we hung out in Monterey at the aquarium there. I think we spent close to 5 hours. Isabella checked out all the fish and there was a lot of interactive exhibits just for kids.

Here she is at one of the many touching pools. She not only got to feel seaweed and kelp, but also starfish, sea sponges and coral to name just a few.



Here she is hanging out in a big clam. One play area she was able to put on flippers and hold a fluke to see how it may feel to be a whale and move.

We watched the sea otters eat and train as well at learn about how vast and important the ocean is.


After we were able to drag Isabella out of the aquarium we headed up the coast and had dinner at a place called the Fishwife. We had a fantastic and very relaxed dinner. Our reward was this breath taking sunset. I felt really lucky that I got such a beautiful picture. Cars were stopped all along the road and folks were just hanging out watching the sun as it slowly set.
Friday we decided that we wanted to hang out at the beach since that is not something we get to do every day in Colorado.

We hung out with Jeremy's friend from college - Sonny - and his son Oliver. Oliver is about 4 and a half. He and Isabella played wonderful together most of the time.
As you can see - Isabella had a blast in the sand and water. She and Oliver played fetch with the dogs out getting exercise, tag with each other, they built sand castles and fish cars for Izi's mermaid dolls.
The water was cold so I didn't bring Isabella's swim suit - expecting her skirt to get wet but thinking that she would still be able to wear it. We were at the beach for about 20 minutes when it was too wet and we decided to take it off and let her run around in her panties.




She loved to run in and out of the waves and look for sea shells. We even saw some seals playing just beyond the surf - how cool is that?

When we were getting ready to leave, Jeremy and I took the pail - filled it with water and washed all the sand off of Isabella. We turned around to pick up our stuff and head to the car. As I looked back - there was Isabella - burying her legs in the sand. We eventually gave up - wrapped her in a towel and strapped her in the car seat. Then headed to Sonny's house to hose everything down.
We made it back to Ashish and Jill's just in time to help make a few pizzas and drink some wine. They have 2 kids as well. Nikhil is 5 and Ajay is 3. They all played so well together. Isabella misses them already.
Saturday Ashish took Jeremy and I to Sonoma for some wine tasting while Jill took the kids to a school fall carnival. California wine country is so beautiful. Their colors are changing as well. We came home with 5 bottles of wine. We had lunch in a little town close by - I had some of the best heirloom tomatoes - man! I will be picking up some seeds soon and starting them so I can have some next summer. I have been hearing a lot about them lately - but nothing I can say will match how good they taste.
We headed back to pick up Izi and then we had to head back to San Fran. We had dinner with Sonny, Sasha and Oliver then called it a night.
Here is a picture of Isabella all tucked in at the hotel bed - it is about 10 o clock and she was still wide awake.

Our flight out of San Fransisco was at 6 am Sunday. Isabella thought is was so cool waking up at 'night'.
Sunday was a nice relaxing day. Jeremy finished his book and I almost finished mine. Once I have a chance I will tell you all about it. I think a lot of folks use their blogs to share their favorite music and books - I don't know - maybe someone can share their favorites with us as well.
The big kids came home tonight and it was crazy like normal. Samantha's hair is getting long and curly. Every time I look at her, her beauty takes my breath away. Daniel is still on restrictions but he is happy enough. He got to hang out with his girlfriend a bit and he was bragging how he got 2 Bs on his Calc tests. He is doing well in school (knock on wood).
I have more to say - but I am getting tired. It is almost 11 and now that the kids are home - the days start early.
I hope everyone is enjoying their fall weather (hopefully the snow is melting up there in WY).
Love to everyone!





















Sunday, October 12, 2008

Brrrrr

We have had a misty chilly weekend here in Denver. Each night I have been going out and covering my tomatoes and herbs. I am trying to stretch our season out as long as possible. It is supposed to be mild next week - I have so many tomatoes almost ripe...

This past week has been nice and quiet for the most part. Last weekend Daniel decided he wanted to have a party at his dad's house since it was empty. Well he got caught and was grounded this past week. Chris made it home from India yesterday and added a few more restrictions as well. It was nice having him home for a change, although he may disagree.

Samantha is doing much better. She is back in the swing of things with school and has adjusted to the new pain level in her leg. It is still red and tender but she is making it thru school with out too much Advil. She was excited to see her dad and Sharmi.

Jeremy and I will be heading out to San Francisco Wed thru Sunday. It will just be the 3 of us. He found some cheap tickets a while back and to tell you the truth I am looking forward to a relaxing vacation. His boss Ashish lives in the area and we will be staying with him and his family for most of the time. We are planning on hitting some wineries, the beach, the zoo and the aquarium. Doesn't that sound like heaven?

Last week I mentioned that we went to the wedding reception of a friend from work. His wife couldn't make it because her son was sick after a chemo treatment for Leukemia. Well the he developed a pretty serious fungal infection in his lungs and just couldn't fight it. He died yesterday. Even though I didn't know him personally - it still hit me hard. This was Leukemia - one of the highest cure rates of most children's cancers - but it was the side effects that did him in - not even the cancer. There has to be a better way to cure this stuff. Every day I hear of another child diagnosed or lose the battle... I just hope that awareness starts ramping up - I really don't understand why it is not already there.

I feel truly bless that we made it thru the past year and a half. Hug your kids, families and friends - that is all that's really important.

Tomorrow I promised Isabella that we would decorate the house for Halloween. I will try to take a some pictures and post later.

Night and love to everyone.

Monday, October 6, 2008

My Favorite Time of Year

Fall is my favorite - the weather is mild and the nights are cool. The trees are starting to change colors. Here is a picture of my last crop of roses. The wonderful smell carried thru the whole main level of the house.



Well we had Isabella's "friend" birthday party this weekend at the Denver Children's Museum. She and 4 other girls played in the many exhibits. There was a full size firetruck with pint size fireman outfits and hats. There was a big tree house with tunnels and nests so that the kids could play as squirrels (Isabella) or rabbits or birds. I think this room was the favorite. There was also a grocery store and restaurant - an art center (See Samantha's work below) and a dress up and dance room. We will definitely have to go back. There was just too much to do in the time allotted.



There was also a workshop where kids could build things out of recycled wood and plastic. Isabella just liked wearing the goggles but Samantha and Bob really got into it and built a helicopter.














After the kids had some time to play, we all gathered back in the birthday room for pink cupcakes and presents. It was still quite a bit of work to bake non-artificial cupcakes (the only thing bad in them was a bit of sugar...), put together healthy munchies, goodie bags and decorations - then load everything up and get to the museum in time to set up in the 15 minutes they give you before the party starts. But the great things was at the end of the 2 hours we got to go home to a quiet house. At least for 30 minutes or so... Grand Bob stayed with the kids and Jeremy and I had to run out to a friends wedding reception. It was really nice but a sad in a way. The brides son has been battling Leukemia for a few months. They planned the wedding around it - but her son ending back in the hospital with a pretty serious infection so only the groom was present. Keep them in your thoughts - he isn't doing well at all. It still makes me cry a bit - I remember my frustration when cancer interrupted our life so many times the past year.


The week was a nice one - no commitments on any of the school nights. Just the normal routine - dinner and homework. Sam has missed some school, however. The pain in her leg is increasing. We are starting to see some redness up near the top of her incision now. I talked with Dr. Heare and he said it is not uncommon for the infection to spread thru the cadaver bone. This may rush Samantha's decision. We were hoping to make it to Christmas break and do the surgery then - but I will be surprised if that happens. She won't walk on her leg much and it hurts to wear her brace. She is determined to get back to school, missing even a few days puts her so far behind. Her dad returns from India this weekend and we will probably meet with the prosthetic doctor next week. Then once Samantha has made her decision to either fight to keep her foot or not we will meet with Dr. Heare and hammer out the rest of the details.


As I have said before - I don't have a preference, either choice will be a rough road. We are just committed to supporting Samantha's decision the best we can. She is leaning toward the amputation so she can just get on with life and I thought I was just fine with that until last Thursday - watching the infection spread and realizing the decision date was coming sooner than later. My stomach flips just thinking of her going thru another surgery. But I will follow her lead and be strong! :)


Jeremy's dad has to go home tomorrow - Isabella is sad. She has had a blast hanging out with grandpa and daddy so much. She just tags along - helping them with their projects in her skirt and fancy new jewelry. She is four now - next year she will start kindergarten - jeez!


Daniel is his same self only pushing the limits a bit more. If I live thru the next couple of years without drowning myself in wine - it will be amazing.


Samantha of course is strong and fighting to feel better - I think this time of year will help with that. We have Halloween and her birthday - then the holidays.


They are forecasting snow for Denver later in the week, so I will be picking all my veggies tomorrow and bringing my plants inside. Always stuff to do - but this time it is stuff I like to do!


I know this month is breast cancer awareness month which is great - but please think of our cancer kids every time you see the pink ribbon - maybe someday we can have a mini gold ribbon tagging along!


I hope everyone is enjoying the fall weather - Love to everyone!





















Layer/Gray Family

My photo
Layer/Gray family includes Jeremy, Dawn, Isabella, Daniel and Samantha. We are active, opinionated and fun loving!