Tuesday, May 27, 2008
Cozy
Monday, May 26, 2008
Memorial Day Weekend
Samantha loved being out of town. On the way over we checked out the tipi and decided that it needed some attention so Jeremy and I will be planning another weekend up there to get it into shape. A tree fell over this winter (a big evergreen) and some of the tipi poles need to be turned. It is still pretty cold up there but with some warm clothes I think we can handle an over night trip.
We rented a pontoon boat on Sunday. It was quite the adventure - the engine had trouble starting a couple of times. We turned it off to fish a bit and just drift and enjoy the sun. But as we drifted closer to the rocks the engine got stubborn. We had to use our 1 paddle and one of Samantha's crutches to push away from the big rocks. At one point Jeremy was on shore pulling the boat along the coast line while Bill (our friend) was paddling and I was keeping the boat out of the rocks. Just when we thought the motor was warmed up enough to handle a rest - it would get stubborn again and not start. After about 4 hours we called it a day even though we were fish less. Samantha loved driving the boat, she did a pretty good job and even Isabella took a turn sitting on dad's lap and steering. Isabella and Burk kept trying to convince us they were just fine without the life vest - but that was a no go.
After the boat ride the kids played more at the house and Sam and I took a drive up to Crested Butte. There is still a lot of snow up on the mountain but the little ski town is coming along. Spring is just starting there...
After another 'super sleepover' as Isabella called it - Susan made us some awesome pumpkin waffles for breakfast - yum! Then Samantha got to go for a ride with Bill in his Roadster.
All in all it was a wonderful weekend. Gunnison life is so laid back and simple. It is a really nice change from the big city. Jeremy went to college there and every time we visit he starts planning on a way to get back. You never know - we just might end up there someday - once the big kids are in college..
Friday, May 23, 2008
Tornados...
Wednesday, May 21, 2008
OMG
I was pleasantly surprised - I don't know if it is always like this but there was a couple of bluesy and hippy type singers. Samantha loved Jason - who can blame her with eyes like his...
Anyway she has been pretty excited all day. I think only Samantha could have gotten Jeremy involved as well. He doesn't watch much TV at all much less reality. But Samantha recorded each show and wouldn't watch it until Jeremy was ready.
Daniel is hanging out in his room - he protests against AI - he likes 'indie' music (independent) and creativity and you don't really find that on this show. Oh well enough of that.
Samantha stayed home from school today - her leg has been bothering her - she has been walking a lot and keeping busy. Today was a short day at school so I gave her the ok. She finished reading one book and started another one.
Isabella came home yesterday and was telling us about a little boy in her class - his name is Arnov and he told her that she was the 'beautifulest' and she thought he was a 'very handsome young man as well'. No kidding - her exact words. Arnov is right though - the kid has good taste! I will try to post a close up of her tomorrow - she has some adorable freckles popping up on her cheeks and nose. That is one thing this blog is good at - reminding me to take pictures. Daniel accuses me of being obsessed with this blog - but I just get excited for the opportunity to record our life.
I found these books on sale at the book store - they were for mother's or grandmother's. Kind of like a baby book only for them instead of a new baby. I got kind of excited. My mom and grandmother and Jeremy's mom live far away so they can't share the stories with us as often. I think it is really important to learn what it was like for them - what they thought of and wished for when they started their families .
It is cool to think I can print this out and pass it on - I wonder how weird my grandchildren will think I am...
Alrighty - I am calling a night. It was a good day - got my first strawberry and the spinach and arugula are popping up - my annuals in the front are still there - they just may win the fight against the bugs...
Daniel has a presentation tomorrow and Sam will be heading back to school - they are both almost done.
Love to everyone!
Monday, May 19, 2008
Ice Cubes In My Wine
The weekend was nice and relaxing. I puttered around mostly. I finished up the planting around the house. Here you see Isabella helping me water the new plants. She just woke up from her nap and was still kind of groggy holding onto her teddy bear. I put together a slide show of my yard. I did it mainly for me ( I love my yard) but I can share... Isabella's friends came over Saturday morning and it was already warm. So we hit the road to pick up a swimming pool. The 3 girls had a blast playing in the pool which was cold and then heading for the warmth of the jacuzzi. The following link includes some of those pictures as well.
http://picasaweb.google.com/layergal/YardWork/photo#s5201906343545335666. Saturday night Jeremy had an old friend over. He had not seen him in 15 years or so - they have been friends since 2nd grade. They stayed up late yapping and having a few beers.
Then on Sunday, I had my normal chores to do - but I also participated in the second Miracle 2008 party planning meeting. I am sure you know about this if you have been keeping up with Kennedy's site at all. I think we are close to having a venue and date. We are hoping for September 13th. Colorado Senator Allard and Senator Hillary Clinton co-sponsored a request to make Sept 13th the first ever Pediatric Cancer Awareness Day. This is pretty big - this is how Breast Cancer awareness started - first a month then a day and then the pink ribbons you see every where. How wonderful would it be to have that same kind of attention on children's cancer. How wonderful would it be to wipe it out forever...
The kids are back home tonight and believe it or not it wasn't as hectic as normal. Daniel had a quick check up for his wisdom teeth - they are looking great. The doctor was very happy. Then I dropped the girls off at home after school to relax while Daniel and I rode our bikes to the grocery store. We loaded up on groceries and came home to pull some dinner together.
Daniel had some homework, Sam had her dramas to catch up on and Isabella played outside. I was telling Jeremy earlier this evening that I thought she was getting more difficult - but after a glass of wine and some quiet time, I think she is just independent. She loves to play with her friends - they are super important to her right now. I think what I see as difficult is actually my problem. I want her to still need me more than she does now. She would rather hang out with the girl across the street instead of me... Isabella hit this stage a bit earlier than Daniel and Samantha. I think they were in kindergarten. Oh well guess it is time for another kid or dog... JUST KIDDING... Jeremy would have a heart attack :)
We are planning to get out of town this weekend and I was hoping Daniel would be able to make it - but he has a job with a caterer and there is a party on Monday. So he opted to stay back and work instead. I knew this day was coming as well - but man is it hard. This weekend isn't anything big - just hanging out with some friends so I couldn't really make him go. He wants to show the boss how committed he is. I can only be proud.
Well it is time for bed. Daniel is complaining that the jacuzzi is only at 102 instead of 104... Time for him to get to bed.
Until tomorrow - Love to everyone!
Thursday, May 15, 2008
Mother/Father
A little video of Isabella singing her continents song. She has been quite a character the last few days. She has started calling Jeremy and I father and mother instead of mommy and daddy. She will just talk - she makes up these elaborate stories and there are some nights she has endless energy. The grocery store has miniature grocery baskets and she took one yesterday when we had some shopping to do. She just started shopping - putting things in her basket... The items I picked out, I had to carry. She wouldn't let me use her basket.
Right now she lives for Dora or Diego shows and playing with her friends. She will do anything - including take a nap - if she can invite a friend over. There is a wonderful little girl that lives across the street. She is in kindergarten now - but she and Isabella play great together. She has so much patience with her, I am always impressed.
She still won't ride her bike and she is getting a bit big for the chariot (we pull it behind our bike). I get quite a workout whenever I take her on the trails.
Work is going ok for me personally but the company is doing another round of lay offs. I don't think I am meant for corporate work - their decisions don't make a lot of sense to me. But until Samantha is healthy and the kids are thru college, I just have to bite the bullet. The benefits are actually more valuable than the salary.
I like the weather we have been having lately. It is cool and rainy. Low temperatures are high enough that I can plant. I finished up the herb garden and the vegetable garden last night and I started planting some annuals in the front garden. I will try and post some pictures this weekend. I think it will be cool to see how the gardens change over the summer.
Jeremy and I get a date night tomorrow. Yahoo! I don't know what the plan is yet - Jeremy is working out the details but it will be nice to get out and hang with my husband a bit. Then I am hoping to get a couple bike rides in this weekend. Jeremy says he wants to ride too - his ankle is ok - the bruising is gone but it still aches and by the end of the day he is hobbling. I also will be going to the next Miracle 2008 party planning meeting on Sunday.
Hopefully I can finish up my planting and get my tomato supports done. There is always so much to do.
Well night for now - Love to everyone!
Tuesday, May 13, 2008
Mother's Night
Today started a bit rocky. Work and family were throwing things at me from all angles. Isabella didn't get to school until 10 this morning. But the day settled down, the big kids are with their dad this week and I was looking forward to my Mom's night out. The group meets way south in Denver - it is a 45 minute drive for me but it is nice to talk with other moms about life. There are moms there with children at all the different stages - some in treatment, some who have lost children and some with kids that are in remission. That is the good part - I feel normal there - my worries are normal and my current distraction (for the lack of a better word) is normal.
There was a visitor tonight - a 25 year old cancer survivor joined the group. She had Leukemia when she was 5 and was in treatment for 3 years. When she was in treatment, her family was told that kids survive this - it will be ok. But they never saw any of those survivors. So when she started college she decided to give back by being the face of a survivor. I don't know if there are adequate words to express how wonderful it is to meet people like her. The few long term survivors that we have met - I cling to their stories. I remind myself whenever the doubts pop up that they are out there - we have met them. So it was really nice to hear from this gal. One question popped up - she was asked if there was any long term emotional side effects - we all know the health ones... Anyway she said that she didn't think she had any until she decided to start meeting with families. She said that she has been diagnosed with post traumatic stress syndrome. Now the hard part... she is in counselling and is doing fine - still out there helping families like us. But as I was driving home I was thinking about her. I haven't asked 'why my daughter' in a long time. Pretty early on in treatment I just moved into my do what you need to do phase. There were more times than I can count when I was angry that Sam had cancer, that she had to deal with the things she did, that she won't be able to wear heels - I know this one is silly but the point is she doesn't have the choice now. It was decided by cancer. There are days when the scars on her body are positive - they are like trophies to remind her how strong she is - but then there are days where they are just reminders that my daughter can't walk on her own yet - that she had to experience pain and the knowledge that she could die. No child should have to be afraid of those things. The hard part knowing that even after her body is healed and she is walking without her crutches she may still feel alone or different later on in life when she is trying to find her identity.
She doesn't even realize what is ahead of her yet - she is sleeping now - all snuggled up in her pink bed with her Ugly dolls. But I know.
Alright - enough of this mushy stuff. I try not to dwell too often, we will just do what we have to do. I am actually getting used the the fact that nothing is really easy or drama free anymore. It took long enough to sink in... :)
Good night to all - love to everyone!
Monday, May 12, 2008
Chubby Cheeks for Mother's Day
Friday, May 9, 2008
Full House
Is anyone counting? That is 6 kids - ages 3 to 16. When Daniel's friend arrived around 6pm - I asked him if he was hungry and needed anything to eat since the kids were eating their dinners. His answer was no I am fine - just had dinner. Since then he has eaten Hot Cheetos, a cheese burrito, chips, 2 ice cream bars, a Popsicle and then decided that he and Daniel should make cupcakes. If I didn't have to go to the grocery store before, I do now...
It is wonderful to have a house full. This is how it should be. All the kids gabbing around the table.
Today was a better day - the weather was wonderful - sunny and mild. I am excited for this weekend - I am going to plant my garden and play with my house plants.
I will take some pictures and share on Sunday.
Until then - Happy Mother's Day to every mom out there - I hope you get many many hugs from your children and can relax or do what ever you want at least on Sunday.
Thursday, May 8, 2008
Dawn til Dusk
Tuesday, May 6, 2008
Quick Update
They removed the old pink cast. Samantha hates this part - to make it worse the waterproof lining stuck to the incision and a scab came off with it. My normally sweet child from the past year disappeared this morning. She let the cast tech have it and then pretty much melted down when she was told she had to move into another room and have it x-rayed.
She hates seeing the incision - but her reaction was more along the lines of someone resisting torture. She has been thru so many situations that were harder than today that everyone was taken aback. I think even Samantha was surprised at her reaction. But we worked thru it thanks to some calm voices and an extra sheet to cover the site.
Then Dr. Heare came in to look - there is still one spot (where the scab came off) that is a bit juicy - so no swimming for a while. But he removed the staples and rubber band (being used to stretch her skin). Needless to say, Samantha was a bit upset with him as well.
He let us know that the ankle fusion was almost totally healed and that at the shin - there was some new bone popping up connecting the healthy bone to the cadaver bone.
Samantha wrapped up the visit getting a neon orange casts with neon green stripes. I would post a picture, but Sam is at the Rockies game tonight. So that will have to wait until tomorrow.
All in all - after the brief drama - Samantha managed the discomfort without any additional pain meds (she is off all of them except for an occasional Advil). I am proud of her. I can only imagine how hard it must be to be reminded of the hard times of the past year when she is feeling so well and getting back to normal.
I am signing off for now - it is getting late and I want to have a bit of down time to enjoy the rain before heading off to bed. Take care - all our love to George and his family!
Love to everyone!
Monday, May 5, 2008
Monday Maddness and Cupcakes...
This afternoon - I picked up Isabella and Samantha from school and we headed to the grocery store to get some food. So I have an excited Isabella because she gets to hang with her sister and I have a typical 14 year old jonesing for cherry cupcakes like her friend had at the last birthday party. Isabella is trying to convince me to get chocolate milk - promising that this time she will drink it all - and Samantha trying to convince me that partially hydrogenated oils aren't too bad if you don't over do...
All this with me trying to remember what I need for the week because even though I have a list - it is sitting on my desk at work with all the other lists I have made and always forget to bring.
I start out with endless patience - but by checkout I am rushing to get out of the store before I collapse in a heap.
Noah stopped by to work on his mountain bike with Jeremy. Which reminds me - I got a picture of Jeremy's foot - 5 days later - after the swelling has gone down:
Sunday, May 4, 2008
I am so EXCITED!
Anyway - thank you to those of you who donated or plan to donate. I am so proud to be riding for my super wonderful and strong daughter.
This weekend was kind of mellow. As I mentioned before Jeremy's ankle is still swollen and he is out of commission. We have just been staying close to home for the most part. It is actually good to do every once in a while. I got the house clean and the wash done. Now I am sitting in my rocking chair with a glass of wine listening to my music - so very calm and relaxing.
Isabella had a great weekend - but she misses her sister and brother. Every day she asks when they are coming home. I haven't talked to Dan in a couple of days - which is not surprising - he always has so much going on. I just have to wait until tomorrow - the the conversation will be non-stop as he rummages thru the fridge - giving me his shopping list.
I talked with Samantha last night - she had a great evening with a friend celebrating her birthday. She was a bit bummed because everyone ended the evening bowling and she couldn't participate. I reminded her again that this is such a short time in the grand scheme of things. But I can only imagine how hard times like this can be for her. She just wants to be normal and do the other normal things. Today I think her dad was keeping her busy visiting friends for lunch and then other friends for dinner. I love that she can get out and enjoy every ones company.
The coming week will be busy for everyone. Tomorrow will be crazy like usual. Having all 3 kids together - all of them talking and playing is wonderful - but loud. :)
Tuesday is a doctor's appointment with Dr. Heare to have her site checked and cast replaced. Then Samantha got some Rockies tickets for the gave on Tuesday evening. Thursday - Samantha had a class field trip to Elitches (fun park). I have to wait until tomorrow to get Daniel's schedule. Then hopefully I can get a couple of bike rides in during the week.
I have been trying to stick to Weight Watchers - and until a couple of days ago - I was doing alright. There is a lot of motivation to get some of this weight off - I really don't want to haul it up and over the mountain passes. ;) This week I am hoping to break even - guess we will see.
Alrighty - I have been looking at other blogs to get some ideas - I tried adding that slide show. I don't know about anyone else - but it uses up too many resources for me to run it on my computer. So I think I will try breaking it down a bit.
If anyone reading out there have blogs of their own and want to share - let me know. I am going to add some of the regular caring bridge sites I follow.
I hope everyone had a wonderful productive weekend!
Love to everyone!
Saturday, May 3, 2008
Balance
This morning I went to Stacey's Miracle 2008 party planning meeting. It was wonderful to see all the moms. But it is so hard for me at times. I feel guilty that Samantha is done and doing wonderful and looking beautiful - when their children are still fighting and feeling yucky. I wish with everything that I am that their children were finished and could get on with their lives as well. I still follow the caring bridge sites and so often I want to post - but the words just don't come. I am hoping that by the time for this party arrives - all the kids will have wrapped up their chemo and they will be feeling wonderful - confident that the cancer is gone.
I finally committed to the Courage Classic - I am going to get my tush on the bike and pedal until I can't pedal anymore. So now I am going to ask for your support - please make a donation - it is easy - just goto http://www.couragetours.com/2008/supersam and make the donation online. It will be a challenge for me - but nothing compared to what Samantha faced this past year. It is the least I could do for the wonderful people at Children's and the support they provide.
We are trying to figure out what to do for Memorial Day Weekend. Samantha has been asking to get out of town. I would personally love to go to a hot springs and just have a quiet weekend with the kids but we have to check with the doctors to see if they will give the ok for Sam to participate. We have some friends in Gunnison that we haven't seen in a while, so we may head down that way.
We will see Dr. Heare on Tuesday for a cast replacement for Sam. He will check her incision site and put on another waterproof cast. Then the next doctor's appt will be on June 5th.
The sun is out today and it is getting warmer - I hope everyone is getting out and enjoying the weekend.
Please support my Courage Classic ride - I truly appreciate anything you can do - Children's hospital is a wonderful cause.
Isabella is having a melt down because of some glitter on her fingers and Jeremy needs me to check for something for him as well.
So I am off -
Love to everyone!
Layer/Gray Family
- mightymom
- Layer/Gray family includes Jeremy, Dawn, Isabella, Daniel and Samantha. We are active, opinionated and fun loving!